Saturday, February 18, 2012

check in

So Adam is still resting well, on the ventilator, waiting for Monday.

He is relaxed, has piano music playing, and no signs of any complications.

The plan is still to let him attempt to breathe on Monday on his own (again in the OR so if any problems happen, help is nearby...).

If he is not able to again, they will place a tracheostomy.

The reason it is so hard for him to breathe is because he used to have such an open airway (severe cleft of the lip and basically absent nose) so a large amount of air could come in and go out with no problems. Now that the lip has been closed and its a very tiny mouth, comparatively, it will take some growing (as Adam grows, his mouth, trachea, oral cavity will grow) before Adam will have ease with breathing again.

The few cases of Bartsocas Papas that have been treated have needed tracheostomy care as well for a few years thru the first surgeries.

It was hard for us to hear (well, mainly me, mom) at first and yesterday was quite a difficult day in many ways.

But so redemptive on so many levels.

What Abba Father has done in and thru Adam so far has been truly incredible.

And we are just seeing the fringes of His garments...the fringes of His desire to receive glory thru this precious life we are caring for.

So in that I rest.

I met a dear friend, Brooke, this morning for coffee. She just returned from serving around the globe and had a neat experience at a home for children in South India. The girl she really fell in love with had been left in a bed in a hospital (After being abandoned at birth) for 4 years. She had not ever been held or stimulated. She was labeled "MR" (mentally retarded) since birth (as if that could be accurately assessed at birth) and is just now learning how to sit up, respond to touch, etc.

It reminded me of what Adam could have been if left in a hospital to be moved bed to bed as availability came.


To know Abba Father authored his life, his adoption, his medical care, his financial provision...so much that makes no sense to us. But it makes sense in His Kingdom and that is what we long for. And we are humbled to be seeing it unveiled before our lives day by day.


This passage from Job has been on my heart and mind this morning as I consider the displays of Abba's glory we have seen thru Adam's life. It kinda mirrors His glory in creation explained here:
 "He spreads out the northern skies over empty space; 
   he suspends the earth over nothing. 
He wraps up the waters in his clouds, 
   yet the clouds do not burst under their weight. 
He covers the face of the full moon, 
   spreading his clouds over it. 
He marks out the horizon on the face of the waters 
   for a boundary between light and darkness. 
The pillars of the heavens quake, 
   aghast at his rebuke. 
By his power he churned up the sea; 
   by his wisdom he cut Rahab to pieces. 
By his breath the skies became fair; 
   his hand pierced the gliding serpent. 
And these are but the outer fringe of his works; 
   how faint the whisper we hear of him! 
   Who then can understand the thunder of his power?”


We have only seen the beginning, the outer fringes.
And at times, I can hardly stand up beneath this tiny display.

Humbling it is.

And another precious video of Adam's first laugh:

The first 5 seconds of the video are the best (after he does his first kinda chuckle...Raja
 brings him up on his shoulder and you can hear the real laugh). Pretty amazing!

video

9 comments:

  1. Thanks for posting an update. God is incredible! Tonight I ask Him to give you and Raja peace, comfort, and strength. For Adam, I ask God to help Adam heal and recover from his recent procedures. I ask that whether or not Adam has to have the tracheostomy on Monday that everything go well. Also, I thank God for all that He has done and continues to do.

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  2. Continuing to take Adam's name to Him. And I can't help but think God is so very proud of Adam and both of you as He hears all these people praying for Adam, people all over the world and He sees his plan for Adam in motion because of your obedience.
    I've got to celebrate the removal of the trach with several of my kids at work, it is a very exciting day that will come for Adam too!

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  3. That made me want to cry


    -saylor

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  4. Jessica - i have been following your blog here since the very beginning and have been praying for Adam as well as you and your husband. Today, my daughter, Melissa, tells me that she had coffee with you! She was telling me your story and I was like, " I know this baby already!!" - I love how God works. I love that I have already fallen in love with Adam and praying for y'all and that you got to meet my precious daughter Who just happened to be in Chapel Hill visiting a friend of hers (Brittany) from college at LSU. Melissa lives in Boston now, but they have remained good friends.

    I am continuing to pray Jessica, for you and for Raj and for baby Adam. May the Lord just 'do His thing' in a mighty way! May He be glorified in all that He does!!!

    Beth Herring


    www.aninstrument4hisglory.blogspot.com

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  5. Our God is so good, isn't He?!!!

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  6. OMG that is too cute; what a sweet laugh he has!! ANd I wanted to say, we got our book the other day and it is SUCH a lovely story and was so great to read to my boys. They are in love with Adam and really reflected on all the help he needs, and all the great help God and been able to summon for him through the two of you as his parents. God bless your family and amazing little Adam :)

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  7. That video is just too sweet for words. Love it!

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  8. Baby Adam, Sending you love and prayers from Sydney Australia. We look forward to getting your Adam elephant book in the mail. Get well soon little guy. <3

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